What is Angelman syndrome?

What is International Angelman Day?

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International Angelman Day brings together AS organizations and families from around the world.

Find an organization

International Angelman Day brings together AS organizations and families from around the world.  Depending on the legal regulations in each country, organizations vary in their structure and their objectives.

Most listed here are formally registered charities, others are informal parent support groups. Many countries do not yet have a registered charitable organization/NGO, but we include and support all family groups, in all countries. 

Organizations and groups are listed here in alphabetical order, with links to their websites and/or FB pages/groups:

Africa

Syndrome Angelman Morocco – Private Facebook group

L’Association Tunisienne des Syndromes Angelman et Rett (ATSAR) – National Association, Tunisia

Asia

Hong Kong Angelman Syndrome Foundation – National Association website (English, Traditional Chinese and Simplified Chinese versions)

Angelman Foundation India – National Association

Angel-no-kai – National Association website

Angelman Syndrome Malaysia – Private Facebook group for families in Malaysia (kumpulan facebook untuk keluarga di Malaysia)

Angelman Syndrome Philippines – National Association Facebook page for families in the Philippines (Pambansang Facebook pahina association para sa mga pamilya sa Pilipinas)

Central & South America

Angelman Argentina Asociación Civil – National Association website

FAST Argentina – Web de la Fundación

Angelman Brasil – National Association website

Asociación Nacional Familias Angelman Chile – National Association website

FAST Colombia – National Association  website

Síndrome de ANGELMAN – ECUADOR – public Facebook group for families & professionals in Ecuador (Grupo de Facebook para las familias y los profesionales en Ecuador)

Angelman Guatemala – National Association Facebook page

FAST LatAm – Covers Central and South America

Website coming soon

Email:  Síndrome de Angelman Uruguay: sangelmanuruguay@gmail.com

Fundación Un Angel en Venezuela – La página de Facebook para las familias de niños con síndrome de Angelman en Venezuela 

Eastern Europe

Angelman CZ – National Association website

Angelman Syndrome Community Malta – General AS information Facebook Page

FAST Poland

Fundacja Angelmana – National Association website

Angelman Syndrome Romania – Private Facebook group for families

Middle East

Israeli Foundation for Angelman Syndrome – National Association website (Hebrew and English versions)

Lebanese Angelman Syndrome Association – National Association, Beirut, Facebook Page

North America

Angelman Syndrome Foundation – Canada – National Association website

FAST Canada – National Association website

Quebec Angelman Society – Quebec region [website in French and English]

Regional support:

Sindrome de Angelman México – Private Facebook group 

Angelman Syndrome Foundation (ASF) – National Association website

FAST USA– National Association website

  • FAST USA– National Association Facebook page 

USA – FB groups for Regions:

USA – FB groups for States:

USA – FB groups for Cities

Oceania

The Angelman Network – National Association website

Western Europe

Angelman Verein Österreich – National Association Website

Angelman Syndroom België – National Association Website

Angelmanforeningen i Danmark – National Association website

Eastern European countries (network)

Suomen Angelman-yhdistys ry – National Association perheille ja ammattilaista Suomessa verkkosivuilla

  • Angelman perheet – private Facebook group for families in Finland (Facebook-ryhmä perheille Suomessa)

Association Française du Syndrome d’Angelman (AFSA) – National Association Website

Syndrome Angelman France – National Association website

FAST France – National Association website

Association Killian – Website to raise awarenes of Angelman Syndrome & bring families together in France (Site de sensibilisation du syndrome d’Angelman et de réunir les familles en France)

Angelman e.V. – National Association website

Angelman Syndrome Ireland – National Association website

O.R.S.A. – Organizzazione Sindrome di Angelman – National Association website

Associazione Angelman – National Association website

FAST ITALIA – National Association website

Vereniging Angelman Syndroom Nederland (vASN) – National Association website

Norsk Forening for Angelman Syndrom – National Association website (National Association nettsted for familier og fagfolk i Norge)

Associação Síndrome de Angelman de Portugal – National Association website

ASA – Asociación síndrome de Angelman – Asociacion Nacional Website

FAST España – National organisation (website under construction)

Angelman Syndrome – Sverige – Private Facebook group for families (Riksförbundet sida för familjer i Sverige)

Angelman Verein Schweiz – National Association (German language)

AngelmanUK – National Association website

FAST UK – National Association website

Spread Your Wings UK

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