What is International Angelman Day?
Florijan
Slovenia
International Angelman Day (IAD) is an annual event held on February 15th.
Since its creation in 2013, International Angelman Day has been the driving force in uniting AS families and patient organizations from all around the world around a common purpose – Angelman syndrome. The day is observed by over 50 charitable/support organizations based in over 40 countries around the world. These organizations are family-driven and all support people with Angelman syndrome, their families, caregivers, and service providers. They initiate and promote research for AS and create educational resources.
What is the purpose of International Angelman Day?
- Raise Angelman syndrome awareness worldwide.
- Mobilize people to action & encourage fundraising for the AS organization in their country.
- Promote research and educational resources in the organization’s own country.
- Remember those people with Angelman syndrome who are no longer with us.
Who supports International Angelman Day?
International Angelman Day is a global event – not an organization.
The International Angelman Day Collective is an informal group of not-for-profit charitable organizations operating independently in different countries all around the world. While each organization has different missions, they all support people with Angelman syndrome and their families.
Angelman Syndrome Community Advisory Board
The Angelman Syndrome Alliance (International), Angelman Syndrome Foundation (USA) and FAST (International) combine efforts in the global Community Advisory Board (CAB).
The Angelman CAB is a group of parent advocates and expert parents/carers. They will use their personal and/or professional knowledge and expertise to discuss and advise on the latest developments, challenges and issues related to Angelman Syndrome.
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Related awareness dates
Other international days that are relevant to Angelman syndrome and can ALSO be used to raise awareness, fundraise and celebrate, include:
- 10th FEBRUARY
International Epilepsy Day - 28/29th FEBRUARY
Rare Disease Day - 26th MARCH
Purple Day. People from around the globe are asked to spread the word about epilepsy by wearing purple.
- NOVEMBER
National Epilepsy Awareness Month - 3rd DECEMBER
International Day of Persons with Disabilities - 10th DECEMBER
Human Rights Day