Since its creation in 2013, International Angelman Day has been the driving force in uniting AS families and patient organizations from all around the world around a common purpose – Angelman syndrome. The day is observed by over 50 charitable/support organizations based in over 40 countries around the world. These organizations are family-driven and all support people with Angelman syndrome, their families, caregivers, and service providers. They initiate and promote research for AS and create educational resources.
The International Angelman Day Collective is an informal group of not-for-profit charitable organizations operating independently in different countries all around the world. While each organization has different missions, they all support people with Angelman syndrome and their families.
Other international days that are relevant to Angelman syndrome and can ALSO be used to raise awareness, fundraise and celebrate, include: